Wenn Sie an weiteren Informationen vom und über das mpn-netzwerk e.V. interessiert sind, gelangen Sie hier auf die Website der Selbsthilfegruppe. Forum: initiative93.com Informationen über myeloproliferative The MPN Research Foundation has a single goal: to stimulate original research. mpn-netzwerk Forum. mpn-netzwerk e.V. c/o Deutsche Leukämie- und Lymphomhilfe e.V.. Thomas-Mann-Str. 40 Bonn. kontakt(at)mpn-netzwerk.de.
Willkommen im mpn-netzwerk e. V.!Wenn Sie an weiteren Informationen vom und über das mpn-netzwerk e.V. interessiert sind, gelangen Sie hier auf die Website der Selbsthilfegruppe. Hilfe zur Selbsthilfe. – so lautet das Motto unseres Online-Forums für Betroffene von Myeloproliferativen Neoplasien und ihre Angehörigen. Gegründet im. Willkommen im mpn-netzwerk e. V.! sich in unserem Online-Forum mit anderen Betroffenen dieser seltenen Erkrankungen auszutauschen und zu vernetzen.
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BuildFor Learn how to participate. We also welcome patients who have had an SCT, with discussion on any ongoing issues. I hope this is a page where people will "LIKE" the page and share their stories, experiences and helpful information that they have learned and maybe make a few friends in the process.
We share our personal experiences and knowledge with an emphasis on local resources. It should be remembered that we are ALL just MPN patients ourselves, and therefore, any more serious questions requiring a medically trained professional response will be referred to, hopefully a growing pool of MPN specialist over time , for that is part of the very reason why this website has been created… to help provide answers!
We belong to other groups where we share information about our illness. This group's ONLY purpose is to give us a laugh, to ease our pain. Laughter is the best medicine!
If a drug or new trial is working for you, please discuss it here and let others know about it.
If your doctor told you about new and upcoming drug therapy, this would be the place to discuss it. In dieser Zeit besteht Zugriff auf die aktuellen Beiträge, aber nur eingeschränkter Zugriff auf z.
Mitglieder erhalten dann auch erweiterten Zugriff im Forum. Die Mitgliedschaft kann jährlich mit einer Frist von drei Monaten zum Jahresende gekündigt werden.
Das Online-Forum des mpn-netzwerk e. Es dient dem Wissens- und Erfahrungsaustausch über diese seltenen Erkrankungen und der gegenseitigen Unterstützung von Betroffenen.
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